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{navheader} {/navheaderformat} -- the hummingbirds' foundation for m.e. the hummingbirds' foundation for m.e. (hfme) is fighting for the recognition of m.e., and for patients to be accorded the same basic human rights as those with similar disabling and potentially fatal neurological diseases such as m.s. home site map hfme books about hfme subscribe what's new? guestbook welcome to hfme - we invite you to settle in and maybe stay a while! hfme explains why: m.e. is not the same thing as 'cfs,' 'me/cfs' or fatigue m.e. is not medically unexplained, vague, fatigue-based or untestable a diagnosis of 'cfs' is always a misdiagnosis 'cfs' is a bogus disease category created for the benefit of vested interest groups everyone diagnosed with 'cfs' deserves a correct diagnosis finally - whether the disease they have is m.e. or, as is far more likely, something else entirely the site also includes: information on how to test for and treat m.e., and understand the symptoms, history and cause of m.e. many different resources for patients, their friends and families, and for doctors and other medical staff hfme's information is referenced and summarises the work of genuine experts in these fields. in addition to our websites and videos there are also several hfme books now available, featuring foreword texts by distinguished m.e. expert dr byron hyde. most websites and groups which deal with these topics are heavily influenced by the misinformation promoted by vested interest groups. they are unreliable, of poor quality and do not serve patients' interests. patients with m.e. and all those diagnosed with 'cfs' that do not have m.e. have gotten a raw deal for the last 20 years. things are worsening as the years pass, rather than improving. real advocacy is vital and starts with accurate information. half truth is no truth at all. get the facts at hfme! what should i read first? where do i start? the easiest way to start learning more about m.e. is to click on the 'quick info bites' links on the left to read brief overviews of many of the issues discussed on this site. you could also start by reading the summary on this page (the homepage) or using any of the following links: the most important papers for m .e. patients are: what is m.e.? and m.e.: the medical facts testing for m.e. treating and living with m.e. - overview the m.e. symptom list finding a good doctor when you have m.e. the importance of avoiding overexertion in m.e. 3 part m.e. ability and severity scale problems with the use of 'me/cfs' by m.e. advocates are we just 'marking time?' hospital or carer notes for m.e. why patients with severe m.e. are housebound and bedbound smoke and mirrors the most important papers for those patients misdiagnosed with 'cfs' (that do not have m.e.) are: the misdiagnosis of cfs and where to after a 'cfs' (mis)diagnosis? why the fictional disease category of cfs must be abandoned problems with the so-called "fair name" campaign: why it is in the best interests of all patient groups involved to reject and strongly oppose this misleading and counter-productive proposal to rename cfs as me/cfs a misdiagnosis letter for 'cfs' misdiagnosed (non-m.e.) patients the most important papers for everyone are: m.e.: the shocking disease m.e. vs ms: similarities and differences who benefits from 'cfs' and 'me/cfs'? a warning on cfs and me/cfs research and advocacy problems with 'our' m.e. (or 'cfs' 'cfids' or 'me/cfs' etc.) advocacy groups a million stories untold the terminology explained the myths about m.e. and myalgic encephalomyelitis is not fatigue, or 'cfs' hummingbirds to read more about the information on hfme most suited to you, please visit our information guides page. see the hfme books page for information about hfme e-books and printed books. if you prefer information in audio/video format, please scroll down to start viewing some of hfme's youtube videos. site search by freefind advanced what is m.e.? myalgic encephalomyelitis (m.e.) is a debilitating neurological disease which has been recognised by the world health organisation (who) since 1969 as a distinct organic neurological disorder. m.e. is classified in the current who international classification of diseases with the neurological code g.93.3. m.e. can occur in both epidemic and sporadic forms, over 60 outbreaks of m.e. have been recorded worldwide since 1934. m.e. is similar in a number of significant ways to illnesses such as multiple sclerosis , lupus and poliomyelitis (polio). earlier names for m.e. were 'atypical multiple sclerosis' and 'atypical polio.' m.e. is an acute (sudden) onset neurological disease initiated by a virus infection (an enterovirus) with multi system involvement which is characterised by post encephalitic damage to the brain stem; a nerve centre through which many spinal nerve tracts connect with higher centres in the brain in order to control all vital bodily functions. this is always damaged in m.e., hence the name 'myalgic encephalomyelitis.' m.e. has existed for centuries. the term m.e. was coined in 1956 and means: my = muscle, algic = pain, encephalo = brain, mye = spinal cord, itis = inflammation. there are more than 60 different neurological, cognitive, cardiac, metabolic, immunological, and other m.e. symptoms. m.e. can be at least as disabling ms or polio, and many other serious diseases. m.e. is a chronic/lifelong disease that in some cases is fatal. m.e. is a testable and scientifically measurable disease with a number of unique features. it is not difficult to diagnose, even within just a few weeks of onset, using a series of objective tests . prefer video? view 'what is me? (1 page version)' here! many more videos are also available on the hfme youtube channel. why are m.e. patients so severely and uniquely disabled? every movement made or second spent upright, every word spoken, every thought thought, every word read or noise heard requires that more blood must be pumped by the heart. the hearts of m.e. patients barely pump enough blood for them to stay alive. their circulating blood volume is reduced by up an astounding 50%. thus m.e. patients are severely limited in physical, cognitive and orthostatic (being upright) exertion and sensory input. this problem of reduced circulating blood volume , leading to cardiac insufficiency, is why every brief period spent walking or sitting, every conversation and every exposure to light or noise can affect m.e. patients so profoundly (causing severe relapse or even death) and strict individual limits must be observed. m.e. patients who are able to rest appropriately and avoid severe or repeated overexertion have repeatedly been shown to have the most positive long-term prognosis. why do people with m.e. desperately need your help? the majority of articles in the media on this topic rarely contain even one legitimate fact about m.e. the majority of patients with m.e. do not have access to even basic appropriate medical care or the appropriate welfare support. what treatments m.e. patients will be given is currently decided by research involving an entirely different and vaguely defined patient group made up of non-m.e. patients. what is happening to people with m.e. is a gross violation of basic human rights. it amounts to legalised medical torture and abuse of some of our most vulnerable members of society. it is inhuman and must be stopped. what is 'cfs'? why was this bogus disease category created? m.e. patients were treated appropriately and correctly diagnosed until around 1988, when there was an increase in the number of m.e. patients and outbreaks in the us. some medical insurance companies (and others) decided that they would prefer not to lose many millions of dollars on so many new claims and so they created a new vague fictional disease category called 'chronic fatigue syndrome' to try to confuse the issue of m.e. and to hide m.e. in plain sight. under the cover of 'cfs' certain vested interest groups have assiduousl

URL analysis for hfme.org

http://www.hfme.org/warningoncfsresearch.htm
http://www.hfme.org/houseboundandbedbound.htm
http://www.hfme.org/cfsmustbeabandoned.htm
http://www.hfme.org/abouthfme.htm
http://www.hfme.org/word/misdiagnosis_letter_for_me_patients.doc
http://www.hfme.org/treatingmethebasics.htm
http://www.hfme.org/methemedicalfacts.htm
http://www.hfme.org/hfmeenewsletter.htm
http://www.hfme.org/hfmereferences.htm
http://www.hfme.org/whobenefitsfromcfs.htm
http://www.hfme.org/mevsms.htm
http://www.hfme.org/treatingme.htm
http://www.hfme.org/amillionstoriesuntold.htm
http://www.hfme.org/whatsnew.htm
http://www.hfme.org/whatisme.htm

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Domain Name: HFME.ORG
Registry Domain ID: D156141797-LROR
Registrar WHOIS Server: whois.enom.com
Registrar URL: http://www.enom.com
Updated Date: 2018-06-11T13:38:54Z
Creation Date: 2009-05-16T06:44:09Z
Registry Expiry Date: 2020-05-16T06:44:09Z
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Registrar IANA ID: 48
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.4252982646
Reseller:
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Registrant Organization: Whois Privacy Protection Service, Inc.
Registrant State/Province: WA
Registrant Country: US
Name Server: MAYA.NS.CLOUDFLARE.COM
Name Server: LOGAN.NS.CLOUDFLARE.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form https://www.icann.org/wicf/)
>>> Last update of WHOIS database: 2018-08-03T03:16:15Z <<<

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  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

  SERVER org.whois-servers.net

  ARGS hfme.org

  PORT 43

  TYPE domain

DOMAIN

  NAME hfme.org

  HANDLE D156141797-LROR

  CREATED 2009-05-16

STATUS
clientTransferProhibited https://icann.org/epp#clientTransferProhibited

NSERVER

  MAYA.NS.CLOUDFLARE.COM 173.245.58.194

  LOGAN.NS.CLOUDFLARE.COM 173.245.59.198

OWNER

  ORGANIZATION Whois Privacy Protection Service, Inc.

ADDRESS

  STATE WA

  COUNTRY US

  REGISTERED yes

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